Consent to ‘personal’ genomics and privacy

Consent to 'personal' genomics and privacy. Direct-to-consumer genetic tests and population genome research challenge traditional notions of privacy and consent.

Privacy Things: Systematic Approach to Privacy and Personal Identifiable Information

Defining privacy and related notions such as Personal Identifiable Information (PII) is a central notion in computer science and other fields. The theoretical, technological, and application aspects of PII require a framework that provides an overview and systematic structure for the discipline’s topics. This paper develops a foundation for representing information privacy. It introduces a cohe...

Consent and Internet-Enabled Human Genomics

1 Center for Integrative Genomics, School of Biology, Georgia Institute of Technology, Atlanta, Georgia, United States of America, 2 Department of Biology and the Carolina Center for Genome Sciences, University of North Carolina at Chapel Hill, Chapel Hill, North Carolina, United States of America, 3 Lineberger Comprehensive Cancer Center, University of North Carolina School of Medicine, Chapel...

Personal Attributes and Privacy

The aggregation of personal attributes into user profiles is a significant privacy concern. Existing attribute management systems support the controlled release of attributes and unlinkability between session protocols, but do not address the problem that attributes distributed in this way may be data-mined for features that allow user profiles to be reconstructed. This paper identifies the agg...

Beyond Consent: Privacy in Ubicomp

Ubiquitous computing, or ubicomp, integrates technology into our everyday environments. Ubicomp fundamentally alters privacy by creating continuous detailed data flows. The privacy challenge is particularly acute in the case of home-based health care where vulnerable populations risk enforced technological intimacy. The promise of ubicomp is also particularly great in the area of home-based hea...